the importance of lived experience
Why does lived experience matter?
Have you ever wondered what it would be like to have more money? Or to be your favourite animal? Sometimes, imagining just isn't enough, so when you're hoping to make a difference to the lives of people with a chronic long-term health condition, you need a good insight into their experiences. What impact does it have on their daily life? Sometimes, the effects of their condition may not be obvious - even to them!
One of the challenges with epilepsy is that after all these years, there is still a stigma, and this prevents a large number of people with epilepsy from being willing to open up and talk about their experiences.
That's where Simon comes in. Simon has decades of personal experiences, plus the knowledge acquired over years of working with literally thousands of others living with the condition. Simon believes that before epilepsy can be part of a wider conversation in the world, people with epilepsy need to be comfortable talking about it.
Below you can find out about the services offered by Simon.
Services
Lived Experience Lectures
Lived Experience Lectures
Lived Experience Lectures
Lectures aimed predominantly at Undergraduate students around epilepsy awareness with a focus on real life examples from Simon's own experiences. Simon covers the topics of medications and their side effects, the need for compassion, the hidden effects of epilepsy and the tragedy which impacted his own family.
Academic Conferences
Lived Experience Lectures
Lived Experience Lectures
For academics, insights into the lived experiences of the condition they are hoping to help are invaluable. Simon brings his insights of working with thousands of people with epilepsy to the fore whilst challenging assumptions in a respectful and meaningful way.
Industry collaborations
Lived Experience Lectures
Industry collaborations
With experiences from working with companies ranging from startups to multinational companies, Simon can help you tap into the information you need to align with the epilepsy community. As a known, and respected face for epilepsy awareness advocacy, Simon brings the patient voice with empathy and authority.