Born in Devon, England, in 1982, Simon has lived with epilepsy for over 20 years with long periods of instability. Simon has been hospitalised numerous times and has the scars that afflict so many who live with the condition – but Simon chooses to wear his as badges of honour!
Simon began his journey supporting others in 2016, starting a support group for people affected by epilepsy. The group grew quickly and before long Simon set up a second in a second town to support more people.
Through this work, Simon came to the attention of his local University who had researchers working on epilepsy related projects in a health and medical research capacity. Simon was invited to advise on several projects over the next few years, bringing a patient perspective to the forefront of academic research in epilepsy and other medical conditions.
One of these projects was a theatre piece which was designed to explain what happens in the brain during a seizure. The project was called Beyond My Control and went on a National tour across the UK.
Simon began public speaking during this time, lecturing to students about living with a long-term health condition as well as delivering talks to the public about epilepsy awareness.
A strong advocate for epilepsy awareness and also a patient perspective in research, Simon was invited to give a patient perspective at the International Conference for Technology and AnaLysis of Seizures (ICTALS), a global gathering of leading researchers and clinicians working on epilepsy related projects.
Simon now works with projects across the UK and the world including projects in Australia, Belgium, and Holland as well as several in the UK. These include University based academic studies as well as Industry led projects developing diagnostic tools and wearable technology – this is a topic which Simon finds particularly exciting for it's potential to empower people with epilepsy.
A lecture about what it is like to live with a long term health condition - and invisible disability.
Delivering a talk to members of the Neurological Academic world about the impact of my condition.
Being recognised as Epilepsy Action's Volunteer of the Year in 2019, for work supporting my community.