A diagnosis of epilepsy can be a scary, worrying and isolating time, whatever your age. I have tried to include some of the best epilepsy information I can on coming to terms with a life with epilepsy, whether you've just had one seizure, or if you're suffering every day.
First of all, make sure you discuss it with your family. As with any medical condition, we need the love and support of our friends to manage the changes and challenges that come with a diagnosis. Make sure they know what medications you are on and the necessary steps to provide first aid when it becomes necessary.
Next, I would recommend making use of social media to connect with others with epilepsy. There is a huge amount of support to be found online – a network of caring, passionate and knowledgeable people. You could start by looking me up on Twitter (@simonprivett) and see who I follow!
To prepare yourself, you want to get as much information as you can. There are some amazing charities out there who offer some amazing advice and support and I would recommend Epilepsy Action as a great place to start (Link below). Epilepsy Action have a great team of staff and some amazing resources to get to grips with what your new diagnosis means and how you can manage it. Epilepsy Sparks is another website you should check out. It’s a blog with some great advice and articles and I still keep up with it after all these years!
Finally, see if there is a support group near you. Epilepsy Action run groups all across the country and there is no substitute for meeting others who are going through, or have been through, the same journey. The people who attend my support groups would tell you, meeting others with epilepsy somehow makes it easier.
Please also check out Epilepsy Sparks and Epilepsy Action. Epilepsy Sparks is an amazing blog about Epilepsy run by Torie Robinson and Epilepsy Action are an amazing Charity who have a wealth of information about Epilepsy which has been hugely useful to me over the years as well as countless others!
Image of an EEG Recording